Ramya saw Dr. Silber, her GI doctor, a few weeks back. Though she is still not even close to being on the growth charts, she has gained a little weight and is following her own little curve. YEAH!!! I am not worried about her being on the charts, I was just worried about her lack of weight gain at all, and am so thankful to see she is gaining on her own little curve. She is officially up to 32 pounds (at 6 1/2 years old)! This is great news! Dr. Silber is pleased with her growth and
On Thursday, Ramya saw Dr. Segal, our orthopedic surgeon. He is very pleased with how the muscles in her core and legs are developing. He thinks if we continue to work with her and help her get stronger, she should be walking with AFOs (instead of her KAFOs) within a years time or so.
We are still working on getting her to use her legs for walking. She wants to do it all with her arms, and not use her leg muscles at all. We are also working on balance and core strength. It is slow progress but she is really coming a lot way! She has a very deeply ingrained fear of being dropped, which makes the walking thing a bit harder, but we take it a day at a time. Her trust is growing and her muscles get stronger and stronger every day. Right now I focus more on standing and sitting exercises with her, instead of walking, but I know once those care muscles are built up, the walking will come right along. I am very proud of how far she has come!
Here are some updated photos of my beautiful girl. I can't believe she's almost been home a year now. It's such a blessing to get to be her momma!
On Thursday, Ramya saw Dr. Segal, our orthopedic surgeon. He is very pleased with how the muscles in her core and legs are developing. He thinks if we continue to work with her and help her get stronger, she should be walking with AFOs (instead of her KAFOs) within a years time or so.
We are still working on getting her to use her legs for walking. She wants to do it all with her arms, and not use her leg muscles at all. We are also working on balance and core strength. It is slow progress but she is really coming a lot way! She has a very deeply ingrained fear of being dropped, which makes the walking thing a bit harder, but we take it a day at a time. Her trust is growing and her muscles get stronger and stronger every day. Right now I focus more on standing and sitting exercises with her, instead of walking, but I know once those care muscles are built up, the walking will come right along. I am very proud of how far she has come!
Here are some updated photos of my beautiful girl. I can't believe she's almost been home a year now. It's such a blessing to get to be her momma!
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